the global ros1 initiative

Patients across the world want the same thing: to improve their prognosis, life expectancy and quality of life. And because we can do more together, a unique initiative has come about. What makes it unique? Over 350 ROS1 patients and relatives in over 30 countries have come together in a global community: “the ROS1ders”. We share knowledge about ROS1 cancer, its diagnosis and treatment. The aim is to share experiences and mutual support, as well as information about authorised drugs and clinical trials. We want to accelerate access to effective treatments and more research. We want to make cancer with ROS1 gene modifications a controllable chronic disease.